Sunday, November 8, 2009

Nov 8, 2009

I've posted two new days on Oct 31, and Nov 2. Still working on others. I'm trying to stay more up-to-date on Avalon's new Caringbridge - so I've posted there today.

I hope all is well with each of you today! We're still here, Avalon is still battling pain demons...and the next surgery is looming large on this coming Wednesday. Ugh.

Saturday, November 7, 2009

Saturday Nov 7, 2009

Quick note, I updated Avalon's caringbridge site.
I'm working on detailed website updates. I'll let you know.


Friday, November 6, 2009

Yet another way to pester people

Well, this glorious blog is not working out as well as I thought. Apparently it's rather difficult to sign up with or to leave comments on...or who-knows-what. I'm so tired of searching HTML sites for free code, worrying it will somehow crash my beloved computers...I give up! I'm not giving people TWO options to "sign up" to follow Avalon news. You can come here, or you can go to her new Caringbridge site: I hope I've managed to cover all options now! Good grief, I feel like I'm stalking people.


Monday, November 2, 2009

November 2, 2009

Good morning, all! I just wanted to drop you a quick note to tell you that I've put up lots of new stuff on Avalon's site. I have been filling in pictures and notes from the last hospital stay. I've also put on lots of pictures from Trick or Treat. The home page of Avalon's website has links to all the new pages, and they link to each other with "Back" and "Next" buttons at the bottom of each page. Some of the entries are loooooong....but as usual, I try to be detailed so everything makes sense. Also, this really is my gift to Avalon...some day I hope she reads it all and realizes how strong and brave she is, even if Mommy sometimes isn't.

Avalon got her new PICC line on Wed, Oct 28th. The first brain surgery (temporal decompression) is scheduled for this coming Wed, Nov 4th. I've got oh...about a zillion and one things to do before then! And what am I doing today? Taking the kids to Cleveland, for a private concert for special needs medical families by the latest Disney darlings, the "Honor Society". Should we be going? Nope. Our van is croaked and we have had to borrow a truck to get there. We're behind in school, and the laundry monster has eaten a significant portion of my bedroom. I have packing and organizing to do. I have calls to make. We should be responsible and stay home..... We're NOT going to.

Folks, if you learn nothing else in life, learn to grab at those little moments with gusto and with both hands. Grab them, enjoy them, savor them. It's the 'moments' that make life worthwhile, not the 'work' of life. I should be responsible today and teach my kids about being an adult. Instead, I'm holding onto the joy of childhood and embracing the day, and every moment I have with ALL of my children... I take NOTHING for granted, and I refuse to look back some day and think, "wow, I guess laundry could have waited. I wish I had gone to ____" No, not me!

So, grab a moment today and let the people you love, know you love them! And if you want to peek into our world over the past few weeks, here you go.

Much love to all of you!!